Category

Stories

Grieving through Living Losses

5/31/26

In the beginning, I always thought Oliver’s diagnosis was something I just had to get through. If I could push a little harder, try a little more, …

Maui to Orlando

3/06/26

Imagine . . . You and your family fly thousands of miles from home for a long-planned and long-awaited vacation. But instead of checking in at your …

What This Year Taught Me as a Mom to a Child with a Rare, Terminal Diagnosis

1/05/26

I have never been someone who felt medically savvy. I didn’t know the language, the systems, or how to advocate inside a world of specialists and …

Happy Mother's Day!

5/11/25

When I think about my mother, I think about my first day of first grade. She drove me to school and pushed me (in my wheelchair) into my classroom. I …

Digital Accessibility

2/13/25

Recently my friend Sheldon Lewis posted the following blog. He has an interesting story to tell. He has been a successful business owner, he is now …

We're Kind of Tired

7/24/24

A few weeks ago I was texting with a family in our network. They have been through months and months of challenge with one of their children. This …

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